Wednesday, August 21, 2013

This Adorable Child....

that smile pretty much sums her up.....
most days of her life...
yes, she can be a total whiner at times,
but I get it....
most of the total whiny times have to do when she feels somewhat out of control,
Hank will tell you that is true of me too....
so...I get it....and her!

Her story is more than I can totally share,
I have yet  ~and maybe never will~  share it with her
God will decide that for her.....and me

My thoughts these days...
~now that I can actually have a thought without being interrupted oh 456 times~
are on how far my Janie has come in a year...
this time last year she was about to undergo her first surgery
with 2 more to come throughout the next few months...
she was in diapers
her health uncertain
preschool on hold
she was happy 
and pretty much has been since she came home...
she did not know life any other way...

As I look back over this past year I realize how much I take for granted..
in the day to day...stuff
I forget that she moved on to underwear
I forget that she goes about her days clean from all the poo
I forget that I don't have to worry about catheterizing 
I forget what could have been....
but God does not..
He knows what He spared her and us from
He knows how many times He has intervened on her and our behalf
He knows what I should be thankful for
He knows what I forget to notice in the busyness of the days
He loves us
He knows we love this gift He has bestowed upon our family
this precious smiley girl that she is.
Oh Janie Jane we love you so.......

Matthew 10:29-3029"Are not two sparrows sold for a cent? And yet not one of them will fall to the ground apart from your Father. 30"But the very hairs of your head are all numbered. 31"So do not fear; you are more valuable than many sparrows.

"reading" her bible to her Hello Kitty
those cheeks....seriously I will miss those so!


  1. She is just too precious!!!!! So glad you were willing to obey and listen to God. What a precious gift. We are paperchasing!!!!! Waiting to see what blessing God has for our family.

  2. God grace is endless ! She is lovely!

  3. She is so darling! I love that you call her Janie Jane.

  4. She is too precious!! LOVE THE SMOCKED DRESSES!!

  5. Adorable and oh so sweet!!! She and SJ are the happy girls! SO thankful she is home with her momma!!! XOXO

  6. What a delight she is! Her smile lights up the room!

  7. Reading your recollection of the last year moved me to tears. We've experienced some of those same milestones & being another Cincinnati Children's mom, I get how BIG clean big girl panties are. We, too, are oh so thankful! Thank you for the reminder of each and every blessing. Janie is a doll!